How Epilesode Began
“I had been tossing the idea around in my head for a while. I wanted to do more within the epilepsy community than simply post on social media.
Then my sister came up with a name:
Epilesode.
It started simply. I would go live and talk about the history of epilepsy. But it didn't stay small for long.
The lives grew into interviews. I started meeting more people, hearing different experiences and learning more about the epilepsy community along the way.
What started as an idea was becoming a conversation.”
BEYOND THE PODCAST
“As I became more involved, I realised I wanted to bring people together from all over.
A year ago, I started the support group. It became another way to meet people, listen, learn and create space for conversations around epilepsy.
Every year for Purple Day, I also hold a Purple Day Pop Up.
For me, Epilesode is about more than posting awareness from behind a screen. It's about getting out there, talking to people and making a difference.”
THEN I MET STEPHANIE...
“Somewhere along the way, I met Stephanie.
What started through the epilepsy community became a friendship, and now we're building Epilesode together.
We bring different things to it. I love the conversations, the podcasts and getting people talking. Stephanie brings the artwork, the website and the techy stuff I don't quite understand!
But we're also helping each other in ways that have nothing to do with websites or artwork.
Stephanie has always found it easier to express herself through writing. By bringing her into the podcasts and conversations, I've watched her begin to find confidence in using her voice too.
We're a team, but more importantly, we're friends.”
“For a long time, it was easier for me to find my words in writing. Teri didn't just give me a place in Epilesode — she gave me a safe place to start finding my voice out loud.”
— Stephanie
“And then Indigo made a comeback.
The seahorse became more than a mascot. Indigo became a familiar face for Epilesode — there for the conversations, the questions, the difficult subjects and the moments that make us smile.
Like Epilesode itself, Indigo has grown along the way.
But one thing hasn't changed: this was never meant to be something created by one person for everyone else.
The community has always been part of the story.”
